Living Life with CP

What I Know About ‘Soul Food’ and Chronic Illness

When I Googled the term “soul food,” I was surprised that a list of actual food items and places to eat came up; when I searched “define soul food,” I was even more surprised to find that soul food is actually defined as “traditional southern African-American food.” I…

Moodnotes: The App You Must Have

Technology is such a huge part of everyone’s life today — we are connected from the moment we wake up until the moment we fall asleep — and technology today is fast and ever-changing, like fashion trends, things come and go at an alarming rate. But every now…

My Top Five Fave Products For Living With Cerebral Palsy

I have a confession: I will always look for a reason to write posts like these. I think they are super fun to write and I always love sharing cool products I find with other people who may need them. This edition features products that range from hair brushes…

How I Feel Now That I’ve Officially Been Diagnosed with Anxiety

Sometimes we have to face things that we already know, but that doesn’t make it any easier. Especially when it’s so hard to explain to someone what you’re going through because “everyone is anxious.”  “An anxiety disorder not specified” was listed toward the bottom of the summary of…

Some Thoughts About the Stigma of Using Assistive Devices

  Recently I’ve been reading a lot of forum and blog posts by young people — those still in high school — about the stigma of using assistive devices (walkers, wheelchairs, canes, crutches, etc.) and they all say pretty much the same thing. Assistive devices, of course, help,…

‘Cripple Punk’, Disability Related Internet Movement

I hope that by now it is no secret that I am a huge fan of the internet and all that it has done for people with disabilities. Earlier this month I posted a piece about the impact of the internet on disabilities and I talked in-depth about how the internet brings…

21 Things Learned in 21 Years with Cerebral Palsy

About life, love, and cerebral Palsy: Nobody’s diagnosis or symptoms are the same as your own; everybody feels and experiences things differently. No one handles pain the same. While you and your friend may both have hip pain as related to your cerebral palsy, you may power through it and…