I feel like I share more about my life in this column than I do on my personal blog. But the response I get here has always been so positive, curious and supportive that I can’t help but continue. So, I have a another confession to make: I’ve…
Since middle school, I’ve really been into planning. At first, I liked being able to plug in important due dates of my classes. But by my second year of college I wanted writing to become my job full time and to be be self-employed. To succeed I had…
Taking care of a child with cerebral palsy (CP) may be a heavier burden for mothers than for fathers, according to a new study. “Long-Time Sickness Absence Among Parents Of Pre-School Children With Cerebral Palsy, Spina Bifida And Down Syndrome: A Longitudinal Study,” was published in the journal…
Update to my recent column about bedwetting: I have found a solution that appears to be working. First, I put aside my experience with the uncaring doctor, the one who failed to conduct a thorough exam on me, yet told me that my diet was too acidic. I didn’t believe him, of…
Although dalfampridine extended-release treatment was found safe and well-tolerated in a pilot study in adults with cerebral palsy (CP), the drug failed to show any impact on walking ability. Although the trial, which focused on adult CP patients with walking difficulties, was small, the lack of benefits prompted researchers to…
Right now I’m hurt, scared and anxious. I’m so embarrassed to be discussing this, but I feel it’s something I must do. You see, for the past month, I’ve been struggling with nightly bed-wetting. I went to my primary care doctor and he thought I had an infection.
Children with spastic cerebral palsy (CP) are unable to adjust their gait when they gain weight, whereas typically developing (TD) children are able to compensate for the excess weight, according to researchers. Results of a study titled, “Children with Spastic Cerebral Palsy…
Today, I want to talk about my watch and how it helps me to deal with the symptoms of cerebral palsy. It is a smart watch, an Apple prodiuct. I know not everyone may have one, and I’m definitely not advising you to get one; but if you…
This was not the article I thought I would be writing today. It certainly isn’t the one I planned. And, for a few reasons, it took me all day to write it. I feel that I’m really putting myself out there this time. That’s saying a lot because…
Surgery is the only option to definitively manage scoliosis in children with cerebral palsy (CP), according to a recent review in the Journal of Spine Surgery. The study also detailed post-operative outcomes for the patients. There is a strong link between having CP and developing scoliosis. The condition is estimated to…