Living Life with CP

A Guide to Management of Spoons and Time

We heard so many conflicting ideas about how to manage our to-do lists while we were in elementary school. “Do the hardest thing first.” “Do the thing you don’t want to do first if it takes less than five minutes to do — don’t put it off.”…

How to Choose the Right Mobility Aid

While on the topic of things to consider when making a transition, let’s talk about mobility devices, and how to choose the right one for you. When it comes to mobility aids, there are so many options within options, because most of the time, whichever…

Molding Your Quality of Life During Care Transitions

As I write this, I am in the early stages of considering treatment options to enhance my quality of life. It’s amazing how things can change. Two years ago I wrote, “I have always felt like the quality of life should never be…

5 Spoonie Tips for Surviving the Holidays

Only nine days left in 2017, so let’s all take in a deep breath … and let it out. Is it just me, or has it been a rough year? Either way, 2018 is on its way, but before we can decide if we will turn over a…

Keeping a Gratitude Jar in 2018

With three weeks left until we ring in the new year, the countdown is on. This year was a trying one for many, but it isn’t too late to make the most of it. But there are two problems. One is that it’s hard to set goals and keep…

Dealing With Frustration and Disability

A while back, I saw a post on Reddit talking about feelings of frustration with a disability. The original poster discussed being frustrated with disability ― specifically limited abilities versus those of their able-bodied peers ― the general challenges that people with disabilities face every day that…

Yes, You Should Share Your Story

For the last 10 weeks, I’ve been taking a course my college calls “Introduction to Disability Culture.” To refresh your memory, I’m a senior in college and I have a physically obvious disability — I would like to think that I have been well acquainted with disability culture…

How to Handle People Who Stare

Hey! I never know how to reintroduce myself to you after being away for a while, and oddly enough, the topic at hand today is how you can reintroduce yourself to people as someone with a disability. Let me explain: Over the course of my life, I have…