Whether a part of cerebral palsy or not, I’ve been struggling with bed-wetting for two months now. I have to say that my experience with the first urologist was one I’d not like to repeat. But today, I went to a new urologist, one part of a health network where I’ve seen several doctors. Waves of hope and relief washed over me as I read the words ‘specialty care’ in her title. I would like to take a moment to thank every primary care doctor/specialist who really listens to and aims to help their patients — ‘specialty care’ sounded like exactly what I needed.
Still, I was terrified. But everyone was super nice and helpful — the nurse who checked my vitals and took all my information was very upbeat and willing to listen. The doctor was even better — friendly, patient, and willing to thoroughly discuss all of the symptoms and problems I’ve been having, all my concerns and questions, the treatments I’ve already tried. I feel like I finally found the help I need.
Tomorrow I’m getting blood work done, and next week I will likely go through a CT scan of my kidneys to see if I have stones. My urine sample (provided today) was looked at in office but will be sent for a culture and, for the next three days, I have to complete urinary journal type logs. (I’m actually happy to do this.)
I wanted to share this because I know I will probably write more posts as I go through the process — remember, previously I was being treated for a UTI. However, my urologist doubts this the cause; a lot of things are up in the air right now. It has not even been ruled out as a cerebral palsy problem, a stress and anxiety problem, or another problem. That’s why I want to share these things, in case anybody else is going through this right now.
When this began two months ago, I felt like I was losing my mind. The longer it went on the more helpless I felt, alongside being less in control of my body. But today that doctor gave me back control by taking the time to pay attention and listen — by being so thorough and caring. She was absolutely lovely; I can’t thank her enough.
No one should feel alone as I did before today. I admit that I’m scared as I write this, as if cerebral palsy is not enough. I don’t know what will happen next. But I will keep everyone updated. And I want you to know if you’re going through something like this right now like me — please feel free to share your stories! Respond to this column!
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