Whether a part of cerebral palsy or not, I’ve been struggling with bed-wetting for two months now. I have to say that my experience with the first urologist was one I’d not like to repeat. But today, I went to a new urologist, one part of a health network where I’ve seen several doctors. Waves of hope and relief washed over me as I read the words ‘specialty care’ in her title. I would like to take a moment to thank every primary care doctor/specialist who really listens to and aims to help their patients — ‘specialty care’ sounded like exactly what I needed.
Still, I was terrified. But everyone was super nice and helpful — the nurse who checked my vitals and took all my information was very upbeat and willing to listen. The doctor was even better — friendly, patient, and willing to thoroughly discuss all of the symptoms and problems I’ve been having, all my concerns and questions, the treatments I’ve already tried. I feel like I finally found the help I need.
Tomorrow I’m getting blood work done, and next week I will likely go through a CT scan of my kidneys to see if I have stones. My urine sample (provided today) was looked at in office but will be sent for a culture and, for the next three days, I have to complete urinary journal type logs. (I’m actually happy to do this.)
I wanted to share this because I know I will probably write more posts as I go through the process — remember, previously I was being treated for a UTI. However, my urologist doubts this the cause; a lot of things are up in the air right now. It has not even been ruled out as a cerebral palsy problem, a stress and anxiety problem, or another problem. That’s why I want to share these things, in case anybody else is going through this right now.
When this began two months ago, I felt like I was losing my mind. The longer it went on the more helpless I felt, alongside being less in control of my body. But today that doctor gave me back control by taking the time to pay attention and listen — by being so thorough and caring. She was absolutely lovely; I can’t thank her enough.
No one should feel alone as I did before today. I admit that I’m scared as I write this, as if cerebral palsy is not enough. I don’t know what will happen next. But I will keep everyone updated. And I want you to know if you’re going through something like this right now like me — please feel free to share your stories! Respond to this column!
Note: Cerebral Palsy News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Cerebral Palsy News Today, or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to cerebral palsy.
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