In my last post I discussed the movie Me Before You and suggested that in order to change perceptions about disabled people, more disabled people need to share their experiences. The long story shorter is this: We need more disabled bloggers sharing their lives on the internet. But…
Be warned: The following post contains spoilers.It also contains possible anxiety/stress triggers. In June the movie Me Before You was released. It was based on the 2012 book by the same name and written by author Jojo Moyes. The main character of the movie, Will, becomes disabled after being…
The common occurrence of eye problems in children with spastic cerebral palsy suggests that all such children should have a detailed ophthalmologic evaluation, according to a recent study. The report, “Ocular findings in patients with spastic type cerebral palsy,” was published in the journal BMC Ophthalmology.
Tests of sciatic nerve mobility in children with cerebral palsy (CP) — partly measured by a “straight leg rise” (SLR) — are relevant measures of likely mobility issues in these patients, and should be included in a clinical analysis, researchers report. They suggest that further study is needed to determine…
This month has been one of extreme ups and downs for me. It’s been hard, but like “the little engine that could,” I keep keeping on, trying to find ways to make it through. There’s still a lot of uncertainties ahead for me and I’ve got a long road ahead,…
I was officially diagnosed with anxiety at the end of August. I posted here some of my thoughts about that. The experience of being diagnosed officially on paper in black and white was validating and terrifying, a mix of relief and dread. What I was going through…
Before getting into this column, I want to say that it is as much for me as for you. This is a post documenting my experience so far. I don’t claim that anyone will have the same experience as I have, and I would love to hear from…
Purple lights will be reflected on streets and landmarks across the U.S., from state Capitols to the Empire State building in New York, to raise awareness about premature births and to honor the families coping with the daily struggles of having a premature baby. November 2016 is the national Prematurity Awareness Month,…
It’s nearly impossible to try to explain to someone what it’s like to live with a chronic illness. You will have good days and bad. Both will appear to your friends as extreme — one night you’re out at the movies, having dinner with them, laughing, having a great time;…
Now that you know a little more about all the things I’ve been going through the past month, I didn’t want you to think it’s all a negative experience. Life doesn’t have to be like that, even when you’re chronically ill. But I know firsthand how easy it…